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Writer's pictureIntersex Sarah

Hi and welcome

Updated: Oct 5, 2020

Welcome to my blog. This is a space for me to write and document my thoughts and musings around my journey of discovering myself as an intersex individual.


My partner mentioned that to help me process being and 'coming out' as intersex I may want to put it down in writing in the form of a blog.


When I first discovered I was intersex I searched and searched online to hear people's stories - so this is mine.


How it began:


I was sat on the edge of my bed - aged 25, Alone - nothing to do, with the whole evening beckoning - the world was my oyster. Essentially, I was bored.


Casually looking around my bedroom I saw the latest letter from the University College London Hopsital (UCLH) just sat on my bedside table - staring up at me.


Before I knew it I had the letter in my hand and I was googling the medical term for my medical condition

Gonadal Disgenesis 45X/46XrY

Instantly videos were popping up and terms I never heard of started appearing; Intersex, Turners Syndrome, Androgen Insensitivity Syndrome (AIS), Differences in Sex Development, (DSD) - the terms kept flowing.


Astounded. My life altered - information after information coming forward.


Many hours later and tears stinging my eyes - I finally tried to get some sleep.


In the morning I was on the phone to my best friend Cherry - I asked if we could meet and talk,. We sat by the river and she listened intently as I told her everything I found out - offering me comfort and a hug.


It was Cherry that initially advised me to write things down, so I did; but there was so much.


The next few months went in a bit of a blur. I was lucky to have such an amazing group of friends.


I was such a mess - everything I thought I knew about myself turned upside down. I was questioning everything.


Questions...


My friends are great - but I needed solid answers.


A few months later and after countless pieces of research done I had my annual check-up with my consultant Prof. Conway at the Endocrinology clinic at UCLH.


We went through the motions, as normal. Then he asked if there was anything else - to which I said "actually, I have some questions."

To which he kicked his chair back and said expectantly, "I've been waiting for this."

For the next hour and a half we talked through everything - he answered every single one. I took Cherry's advice and wrote down my questions on my phone so I wouldn't forget to ask anything in the heat of the moment.


I came out of the appointment filled with lot's more information and answers - and information in regards to my personal story and circumstance.


There was so much for me to research and look into - it was then that I believed that I had only scratched the surface of who I was and what happened to me.


Follow my blog for more posts regarding my Intersex story...

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